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Five years later....

3/11/2014

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PictureOne of my favorite memories...On an air-boat in the Everglades...precious memories!
Yesterday, March 10, 2014, marked five years since Shane’s passing. Five years since the night that I turned off the light in that hospital room, only to flick it back on twenty minutes later and realize that in that short span of time life as I knew it at had ended.  Five years..
There’s a saying I’ve heard that says ‘the days go slow…but the years go fast…’  I get that.  That is so how it feels in this new existence.  Some days seem to drag on endlessly…some, where your heart aches and just can’t keep up with the reality that your head continues to pound into it..those days drag on endlessly.  But the years?  In honesty, they seem to have flown…so fast, with so many changes, so many happenings, so much adjustment.

When Shane first passed I read that it takes five years to once again begin to feel normal after the loss of a child…to begin to breathe normally, to function normally, to live ‘normally’, so as you can imagine I have waited for this date.  I have waited for this five year anniversary where I might start to recognize myself and experience some sense of normalcy once again. 

Now that date has come and gone…but the sad reality is that there is no return to what was known to be normal.  However, there is a more gentle acceptance of what is.  So maybe that is a better description of what the five year marker means…not a return to normal…rather an acceptance of what is, and the ability to live relatively comfortably in that.  So maybe…that is where I am..where we are…and that’s okay.

What has been most interesting to me is that what I thought might have become easier by now, really hasn’t.  I thought that the time might have come when I’d miss Shane a little less…that I might be used to his not being here and be more content with that.  But strangely, I continue to miss that young man so darn much it’s incredible.  It still takes my breath away on a daily basis.  I wonder what the scheduled timelines are for that to change? My guess…there are none…it’s all uncharted water.

So now, five years after the fact, these are the things I know for sure. 

  •  I do still continue to miss that beautiful child of mine every minute of my day.  He is a part of every breath I take and every action I make, and I don’t see that changing any time soon.  Whatever your spiritual beliefs might be, mine tell me that he reaches out to me daily in symbolism and experiences that let me know he is out of sight, but he is never too far away.
  • Shane’s force is as strong in the world today as it was when he lived here with us, and maybe even stronger.  For me and others that loved him, he’s become our passion and our purpose to continue to make change in the world for all the other ‘Shanes’.  His life may have ended, but his mission continues.
  • With time it does become easier to let go of the mementos and keepsakes that you cling to in the early period of the loss…but as you find you’re able to release what you cling to, those that you release those treasures to value and cherish them in a way you might not have believed possible earlier on.  You only keep what you give away….so pass the magic of the memories along.
  • Shane gifted our lives with his existence for a reason…and every time Trem and I share the story of their friendship, his lessons, our memories….that reason becomes more concrete, more real, more important and intentional for both of us.  We all have a greater purpose on this earth than we can ever even imagine.  Love, joy, connection, acceptance…those are our highest reasons for being here …and the most beautiful thing for me is that in every opportunity to share that story…those are the emotions I experience…Love, joy, connection and acceptance…a state of bliss…a state of flow in sharing our story.    And that tells me that in doing what we are doing in sharing that story, I am being offered an opportunity to share my highest purpose to do my part in moving the world closer to being a place of acceptance, inclusion and equality.  What a gift…what an opportunity.  Thank you for that Shane…love you forever…like you for always…as long as I’m living…my baby you’ll be. xoxo


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The greatest photo, Shane in the grape leaves, taken by Bianca Bell for my Christmas present project they planned
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Sharing our story with CBC Radio Noon February 2013

2/12/2014

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Love looking back into the archives of what has happened over the past with our 'Just My Friend' presentation.  This week I was reminded of the interview we did last year in conjunction with 'Inclusive Education Week' in sharing our story about why it is so important for Trem and I to continue to share the story of the friendship that had developed between Trem and my son,
Shane Dickson. 

I love that last year we were fine-tuning the presentation, and this year we will be presenting at the MCEC conference at the Victoria Inn next week, in celebration of Inclusive Education and all that it means to all stake holders.  We are both very proud that we have this opportunity to share the story of the friendship that developed between the boys, and remained as they grew into young men.  We love that this story has the potential to ignite possibilities for other children with and without disabilities to create deep, lasting connections with each other.  And what we really love is having the chance to keep Shane's incredible memory and legacy alive by being able to share him with you, through our memories and perspective! Thank you so much for allowing us to do that, and please come out and join us when you see us at an event near you!

Our love and gratitude..
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Another great opportunity to share what we know for sure...

1/31/2014

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No doubt you're going to wonder what this sign from Holland, Manitoba has to do with our presentation...but on our way to a presentation last week, we saw this sign.  One of the songs that we've created to share the story of our journey is 'Welcome to Holland'' based on an amazing poem written by Emily Pearl Kingsley about having a child with a disability.  This seemed to us to be a sign that we were on the right road!!!!

January 30th, we enjoyed another great opportunity to share our story of friendship and inclusion, and plant seeds of possibility when we presented for the support staff team at Neelin High-school in Brandon. What can be most rewarding for us is when we have the opportunity to present to the very people that have such incredible power in supporting the friendships that Shane and Trem experienced. 
     Too often school teams go unrecognized in the roles they play in the development of these extraordinary friendships and experiences.  Friendships between children with and without disabilities require intentional facilitation.  Even when the initial steps begin authentically at the grass roots level between the children themselves, they do require ongoing support from everyone around them...the educational team, the parents of the child with a disability and the family of the child without.  It's a concerted team effort, but the rewards of working in support of the magic that unfolds is second to none!  The reward of seeing the outcomes of that friendship in unsurpassed in anything else one can experience!  We would love the chance to share the story of our journey with you if the opportunity were to present itself!

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The Power of Story

10/27/2013

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Getting started with the song "In the Company of Friends'
On October 17, Trem and I had the wonderful opportunity to share our story not once, but twice to two very supportive audiences in Brandon.  We had the opportunity to talk about why we feel this message is important to members of the Brandon SD in the afternoon, meeting some wonderful new people, and reconnecting with someone from both of our pasts, who was instrumental in this story being the positive one that it turned out to be.  It was so great to see you Donna!
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Lynda singing 'Welcome to Holland' to help people have an understanding of the experience of finding out your child has a disability.
That evening we also got to share our presentation with community members who came out for the evening thanks to the efforts of Community Living Brandon.  It was great to be able to talk about the friendship, the challenges, the heartache and the blessings with not only many familiar faces, but many faces that weren't.  Our hope and belief is that each person that hears this story will be touched in some way.  Maybe they too will connect with a person they know with a disability.  Maybe they'll be a little more understanding of what the families of children with disabilities experience.  Maybe they will open their hearts just a crack.  Time will tell.
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Trem shares his stories and experiences.
I am honored to have a young man like Trem to do this with.  His understanding and passion for this work is way beyond his young years.  His honesty and authenticity is appreciated by all who come out I am sure.  We're two more fortunate people that Shane managed to bring together to continue to work towards change.  Funny how life goes isn't it?
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Lynda and Trem sharing. The power of our stories. Never underestimate them!
We both really want to thank Community Living Brandon for this opportunity and the organizing that went into it.  I know there was a lot of work done to make this happen! Community Living Brandon is a great group of people who are working really hard in Brandon and area to try and make change for people with disabilities.  To help families find the resources and support they need, and to help those in the adult world to advocate for things like wage improvements, that will help people with disabilities hire and retain staff that can come to see this as a career, rather than just a job.  If you want to know more about some of the initiatives that they are undertaking, please go to their website at http://clbrandon.com/ where you can see upcoming events.  You can also get a copy of a letter that can be sent to your MLA's to ask them to look at improving the wages of people who work in the field of Supported Living, so that people who require the support can live good, full lives in their communities!  It''s all about inclusion isn't it!


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So much to be Thankful for!

10/13/2013

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Thanksgiving weekend here in Canada, and we are blessed with so many wonderful things!  An awesome fall day, family to celebrate with, food on the table, having a roof over our heads.  The list can go on and on, and mine does.  I am one of the luckiest people I know.
For all the challenges that have given me reason to feel less than grateful in times gone by, I have had the time and the opportunity to see that gifts that were hidden within those challenges and heartaches.  But believe me, none of that happened over night.  Finding the diamonds hidden in the rough patches of our lives never does come quickly or easily.  But with time, it does come. 
This is one of my favorite pictures of a reminder of all that I have to be grateful for, even after the heartache.  It came in the form a call I got from Trem in July of 2010, shortly after he and Shane should have graduated together.  Circumstance resulted in Shane not being with us to graduate in body, but he could not have been more present than he was that day in spirit!  Trem won the 'Shane Dickson Memorial Award for Inclusion' that year, and Trem texted me a few days later to tell me that he was planning to have a tattoo done to honor Shane and the years that he had been with us, asking if I was okay with that.  How could it ever have not been?  My heart exploded.
This was the picture he texted me of the tattoo that day...raw, and new and painful...sort of like the memories we shared of Shane were like at that time.  Now, over 3 more years later, the memories still can be painful, but they are less raw, and not nearly as new.  The good news is that they are still just as alive and just as important as they ever were. 
As we celebrate another Thanksgiving, I am thankful for the opportunity that Trem and I have to share the story of the friendship that he and Shane shared.  I am grateful that Shane was blessed with a friend who recognizes the importance of sharing that story.  To share the hope that that this can happen for all children, with and without disabilities.  To share the hope that the story we choose to share with people will lead to more friendships, more tolerance, more opportunities, start to pave the way to eliminating bullying in our schools today. Having the opportunity to be part of the change that will move the world forward into a softer, more inclusive society is something that is so much to be Thankful for! 
As you count your many blessings today, don't forget to be thank ful for the ways in which you too have an opportunity to make change for something better  in our world....then go forward and find your own way to be part of that change....and be Thankful that you live in a world where you have the freedom that you can make those choices!  Namaste


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Forward>>

    Lynda and Trem are Grateful knowing....

    we are so lucky to have this opportunity to share the things we are doing, and the many things we are learning as we continue to work towards inclusion in all areas of the world we live in !  
    We appreciate having this opportunity to share our experiences here, as we all grow together! 
    Thank you for being part of our journey!

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